Taking root in Rochester, NY · Our founding community is coming together.
beyondPREECLAMPSIA
ROCHESTER ROOTS. ROOM FOR YOU.

A community
built with you.

We’re beginning close to home—with listening, shared experience, and the belief that families deserve a softer place to land.

Editorial illustration of a warm conversation among women
OUR FIRST GATHERING · IN PLANNING

Before we build,
we listen.

We’re planning a free listening session for Rochester-area people affected by preeclampsia, postpartum preeclampsia, or HELLP syndrome, and their loved ones.

What felt missing? What helped? What would meaningful support look like here? Your perspective can shape our next steps.

Location
Rochester area; venue to be confirmed
When
Date to be announced
Cost
Free
Participation
Sharing is always optional
HOW WE WANT THIS SPACE TO FEEL

Our community commitments.

Choice

You decide what to share. Listening counts, and you can step away whenever you need to.

Respect

Different experiences belong here, including difficult recoveries and loss. No judgment, comparison, or pressure.

Care

We intend to ask participants to respect privacy and keep personal stories within the group. Peer spaces cannot guarantee confidentiality.

BEFORE YOU JOIN

A space for
your questions.

Is support really free?

The public resource library is free to access. Our planned peer community and listening sessions are intended to be free, too. You do not need a hospital referral, employer benefit, or organizational contract to register your interest.

Is the community open yet?

We are in our founding phase. You can explore resources now and register interest in future listening sessions and peer support. Dates, facilitators, and meeting formats will be shared when confirmed.

Who is this for?

People affected by preeclampsia, postpartum preeclampsia, or HELLP syndrome, along with partners and family members. You are welcome whether your experience is recent or years in the past, including experiences of loss.

Do you provide medical care?

No. This is a community and education initiative, not a healthcare practice. We do not diagnose conditions, interpret blood pressure readings, prescribe treatment, or provide crisis response. Your clinical team remains your source for individual care.

Do I have to share my story?

No. Listening is participation. We want to create a space where sharing is optional, no one has to explain their diagnosis, and stories are never used in public content without separate permission.

How will you keep patient support free?

Our plan is to fund community activities through clearly disclosed commercial sponsorships, educational partnerships, and media work. These are separate from patient participation. We are not currently soliciting charitable donations or claiming nonprofit status.

YOUR NEXT CHAPTER DOESN’T HAVE TO BE SOLO

There’s room
for you here.

Help shape a community where understanding comes first.

A LITTLE CONNECTION STARTS HERE

There’s room for you.

Register your interest in our developing community. No fee, no referral, and no need to share health details.

Not monitored for urgent needs. In an emergency, call 911.